Patient Leader and Advocate

Thank you for stopping by my page!  I am a  chronic illness warrior (aka "Spoonie").  I currently suffer from NASH stage 4 cirrhosis, alpha-1 antitrypsin deficiency (I am a rare IZ genotype), and axial spondyloarthritis and a myriad of other ailments.  I will be posting information regarding these conditions and my experiences with them.  I also have links to organizations that have assisted me in advocacy and patient leadership.